Showing posts with label Not Dead Yet. Show all posts
Showing posts with label Not Dead Yet. Show all posts

Friday, September 27, 2024

Opinion: Michigan Right-to-Die Legislation Must Consider Concerns of African Americans

In the 1990s, Royal Oak’s Dr. Jack Kevorkian put a national spotlight on the debate over the right of terminally ill patients to die with the aid of a physician. As Democrats reclaim their majority in the state Legislature, Michigan may be at the epicenter of this conversation again. 

Last fall, a group of Democrats introduced the Michigan Death With Dignity Act, which would legalize physician-assisted dying, also known as medical aid in dying [, assisted suicide and euthanasia].

Patients with a terminal condition, expected to die within six months, would be able to request that a participating doctor write them a prescription for drugs that, when self-administered and ingested, would allow the patient to die on the date of their choosing.

Terri Laws [pictured here] is an associate professor of African and African American studies at the University of Michigan-Dearborn:

Many Michiganders will see this legislation as reasonable and compassionate. To others, however, often people of color, this legislation is more complicated.
Some fear doctors and insurance companies may deny them lifesaving treatments and steer them toward assisted suicide instead. Others are concerned that legalization will normalize this type of death as the “correct” way to approach the end of life, when their cultural beliefs and practices tell them otherwise.

Monday, September 16, 2024

Not Dead Yet: Baby Simon Withered Away Due to Hospital Imposed Starvation

By Lisa Blumberg (pictured right).

Trisomy 18 is a genetic condition that usually results in physical health problems and cognitive limitations. Life expectancy is currently shorter than typical but people can live into their 20’s and 30’s and one American with trisomy 18, Megan Hayes, celebrated her fortieth birthday with fanfare. Unfortunately, it seems that this information has been slow to percolate down to medical professionals.

When Simon Crosier was born in 2010, he was given full care until he was diagnosed with trisomy 18 at three days old. His parents, Sheryl and Scott Crosier were then told, “your child is now incompatible with life.”

Saturday, August 17, 2024

Disability Rights Opponents of Assisted Suicide Are Not a “Vocal Minority”

By Meghan Schrader [pictured right]  

Original publication 08/01/24

Meghan is an autistic person who is an instructor at E4 - University of Texas (Austin) and an EPC [Euthanasia Prevention Coalition]-USA board member.

Over and over again assisted suicide proponents claim that disabled people who oppose assisted suicide are a “vocal minority.” For instance, American euthanasia advocate Thaddeus Mason Pope ridiculously wrote on X that “millions” of disabled people want the right to have “MAiD.” Well, it’s not true. 

Friday, July 5, 2024

Not Dead Yet: "Medical Aid in Dying" is a Marketing Term

Not Dead Yet is a national disability rights organization focused on combatting disability based healthcare discrimination, particularly in the context of advanced or terminal illness. We are extremely disappointed that HPNA [Hospice and Palliative Nurses Association] would consider adopting a “stance of engaged neutrality” regarding whether assisted suicide should be permitted or prohibited. We urge HPNA to reverse course.

Moreover, although the proposed position statement [download available here] claims neutrality, its content reads like a defense and sometimes an outright promotion of a public policy of assisted suicide. Although only 11 jurisdictions have legalized the practice, HPNA’s statement says, “All hospice and palliative nurses should develop competence and mastery regarding MAiD in the domains of education, clinical practice, research, advocacy, and leadership.” HPNA appears not to have considered the views of either palliative care experts or disability rights activists who oppose the practice. The statement includes only limited references and minimal tolerance toward nurses who object to the practice.

HPNA tries to explain why assisted suicide should be referred to as “medical aid in dying” or MAiD for short. These are marketing terms. As Dr. Ira Byock, a palliative care specialist has written, “‘aid in dying’ makes it sound like giving someone a lethal drug is an extension of hospice and palliative care. It is not.”

Thursday, June 13, 2024

Boston Globe: “For Assistance in Dying, Please Press 1”

By Diane Coleman (pictured right) 

Liz Carr’s documentary, “Better Off Dead?”, continues making a difference, serving as a wake up call about the dangers assisted suicide laws pose for people with disabilities. A Boston Globe columnist noted this week:

The most chilling detail in “Better Off Dead?” a new BBC documentary by the English actress and comedian Liz Carr, is an automated telephone message. …

Thank you for calling. The Ontario Medical Assistance in Dying Care Coordination Service is designed to provide information about end of life options in Ontario and referrals for Medical Assistance in Dying. If you would like to speak with an adviser to access the service or get more information, please press 1.

Monday, June 3, 2024

New York Bar Association and Medical Society Ignore Dangers of Legalized Assisted Suicide

By Lisa Blumberg (author pictured here).

The New York State Bar Association (NYSBA) adopted a resolution in 2023 that supports the provisions of the assisted suicide bill before the legislature. This position is based on a report by its Task Force on Medical Aid in Dying. The report is extensive but seems more of defense of assisted suicide rather than a balanced inquiry into the myriad issues raised by its legalization.

Saturday, May 25, 2024

Actress and Activist Liz Carr Creates “Blistering” Documentary On Assisted Suicide

By Diane Coleman, Not Dead Yet.  Original publication 05/16/24.

Liz Carr’s newest groundbreaking documentary on assisted suicide is a in-depth exploration of the emotions and societal pressures that lie at the heart of disability opposition to a public policy that threatens ours lives. The Guardian called it “blistering.” Her gripping and personal narrative, a must-see tour-de-force is available HERE for now. ...

In 2013, Liz Carr created a two part BBC documentary called “When Assisted Suicide Is Legal” about what she called her Euthanasia Road Trip in Europe, Oregon and Washington State. NDY covered Part 1 and Part 2 with excerpts and commentary in our blog, and the audio documentary is still live online:

Friday, May 3, 2024

Not Dead Yet: New Rule Prohibits Discrimination in Suicide Prevention Services

By Diane Coleman (pictured here).

May 3, 2024

Last November, Not Dead Yet (NDY) filed a Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations. This week, the Department of Health and Human Services announced the finalization of the new regulation prohibiting disability discrimination in healthcare under Section 504 of the Rehabilitation Act.

While the primary focus of our public comment was the denial of life-sustaining healthcare treatment based on negative disability biases, we mentioned the issue of equality in suicide prevention as well, for example, here:

As HHS has indicated in its discussion of the proposed rule, biases about the impact disabilities have on “quality of life” are endemic among medical professionals. One manifestation of these discriminatory attitudes is the failure to treat suicidal depression in people with disabilities, including older individuals, although other people with suicide ideation are routinely offered suicide prevention services.

Thursday, March 21, 2024

A Short History of Assisted Suicide; Is Canadian Style Assisted Suicide/Euthanasia Coming to California?

By Diane Coleman 

A California State Senator, Catherine Blakespear, introduced a bill (SB 1196) earlier this month that resembles Canada’s law and, here in the U.S., reflects the broad agenda openly espoused by the Hemlock Society and Final Exit Network. The agenda of these organizations has long included eligibility for people with non-terminal conditions and disabilities.

When Not Dead Yet activists joined me in attending Jack “Dr. Death” Kevorkian’s trial in the late 1990s, Hemlock’s executive director Faye Girsh was there supporting him. Two thirds of his body count consisted of people with non-terminal disabilities. Girsh also advocated eligibility for people with cognitive disabilities and dementia, with or without consent. Leaders also advocated active euthanasia and “mercy killing.”

Saturday, March 9, 2024

Access Living’s Amber Smock Quoted Extensively In Chicago Tribune

By Diane Coleman [pictured here]

Three days ago, Amber Smock, Vice President of Advocacy at Access Living, was quoted extensively in a Chicago Tribune article about Illinois’ assisted suicide bill. Today, the editorial board of the Tribune took a position opposed to the bill.

The March 5th article, “Should Illinois become a ‘right-to-die’ state? Lawmakers consider end-of-life option for terminally ill adults,” covered both sides. Here is the segment giving Access Living’s perspective as a disability rights organization:

Yet some disability rights advocates warn that the measure could put vulnerable populations at risk, including seniors, disabled folks and people with mental health issues.

Thursday, December 28, 2023

Anita Cameron: "My Mum Didn't Die"*

Good morning. I’m Anita Cameron, Director of Minority Outreach for Not Dead Yet, a national, grassroots disability organization opposed to medical discrimination, healthcare rationing, euthanasia and assisted suicide.

Assisted suicide laws are dangerous because though these laws are supposed to be for people with six months or less to live, doctors are often wrong about a terminal diagnosis. In 2009, while living in Washington state, my mother was determined to be at the end stage of chronic obstructive pulmonary disease. I was told her death was imminent, that if I wanted to see her alive, I should get there in two days. She rallied, but was still quite ill, so she was placed in hospice. Her doctor said that her body had begun the process of dying.

Though she survived 6 months of hospice, her doctor convinced her that her body was still in the process of dying, and she moved home to Colorado to die.

My mum didn’t die. In fact, six weeks after returning to Colorado, she and I were arrested together in Washington, DC, fighting for disability justice. She became active in her community and lived almost 12 years!

Thursday, December 21, 2023

Terri Hancharick: Being Disabled Doesn’t Mean Death Is Better Than Life

https://notdeadyet.org/2023/09/terri-hancharick-being-disabled-doesnt-mean-death-is-better-than-life.html

Delaware’s Daily State News published an opinion piece by the Chair of the State Council for Persons with Disabilities who is also the parent of a person with developmental disabilities. In the article, Terri Hancharick stated in part:

Delaware’s assisted suicide bill is based on legislation in Oregon, where assisted suicide was first legalized. Data from Oregon provides insight into the top reasons that patients ask for assisted suicide. The top five reasons that people gave were the loss of autonomy, being unable to participate in activities that make life enjoyable, loss of dignity, loss of bodily functions and becoming a burden on family, friends and caregivers. These reasons are all disability-related. Contrary to popular belief, pain does not even make it into the top reasons people give to justify their application for assisted suicide.

Friday, June 12, 2020

Massachusetts: Assisted Suicide Bill Timing "Wrong"

To view full press release on Not Dead Yet, click here.                   


John Kelly
Second Thoughts Massachusetts issues the following statement in opposition to the favorable report given by the state legislature’s Joint Committee on Public Health to Bill S. 2745, legislation that would legalize assisted suicide in Massachusetts.
Assisted suicide legislation sends a message of ‘better dead than disabled’ while completely immunizing doctors, heirs, and caregivers who can encourage or even engineer a person’s death without fear of prosecution,” said Second Thoughts Director John B. Kelly.

Monday, November 20, 2017

Diane Coleman's Letter to Members of the Victoria Legislative Council Opposing Assisted Suicide

Diane Coleman, JD
I am writing behalf of Not Dead Yet, a national disability rights group in the U.S. that opposes legalization of assisted suicide. We understand that a proposal in Victoria would pertain specifically to neuromuscular disabilities. This letter will focus on misdiagnosis and the uncertainty of terminal predictions by doctors, as well as the significance of breathing support for those of us with these conditions. My own experience illustrates the issues.

Saturday, June 18, 2016

Worldwide Theater Protest: Melbourne Australia

http://thevine.com.au/entertainment/disability-activists-boycotting-hashtag-mebeforeeuthanasia/
While rom-com ‘Me Before You’ was only released in Australia today [06/15/16], it’s already receiving a growing amount of backlash. . . .
Activists . . .  argue the film promotes the notion that disabled lives are considered less valuable and that the film romanticises death. . . .
For more information about the worldwide theater protest, click here.

Monday, March 16, 2015

Elderly Murder-Suicide: Should We Praise Old Men Who Kill Their Wives and Themselves?

"A man who murders his sick, innocent, helpless wife is no hero."

http://www.huffingtonpost.com/elizabeth-marquardt/elderly-murder-suicide_b_1402935.html

By Elizabeth Marquardt
On Thursday, March 29, the bodies of Adrienne and Charles Snelling were found. Police believe Charles killed Adrienne -- her exact cause of death is still pending -- and then shot himself. Only last December, Charles Snelling published in the New York Times a poignant and widely-circulated piece about loving and caring for his wife with Alzheimer's disease. (Columnist David Brooks, whose query for life stories initiated Snelling's piece, wrote in his column yesterday about this case.)

Wednesday, December 10, 2014

Autistic Self Advocacy Network (ASAN) Condemns Exclusion of Disabled People at NJ Hearing on Assisted Suicide Bill

http://www.notdeadyet.org/2014/12/autistic-self-advocacy-network-asan-condemns-exclusion-of-disabled-people-at-nj-hearing-on-assisted-suicide-bill.html

The Autistic Self Advocacy Network  (ASAN) has issued a statement condemning the exclusion of disabled people from testifying at yesterday’s (Dec.7) hearing on a proposed assisted suicide bill in front of the New Jersey Senate Health, Human Services and Senior Citizens Committee:
(Excerpt)
The Autistic Self Advocacy Network is deeply concerned about the omission of disabled people and representatives from disability rights organizations at yesterday’s hearing. Given that more than half of the groups in the New Jersey coalition opposing the bill are disability rights organizations and centers for independent living, it is unconscionable that the committee deliberately excluded witnesses from the disability community. Even after our community submitted a formal request for inclusion among the witnesses, the committee declined to invite a disability community representative.

Read the entire statement here.

* * *

Margaret Dore, President of Choice is an Illusion, was also excluded despite multiple requests to participate.  So the proponents' deceptively named advocacy group,  Compassion & Choices, was allowed to present unopposed by its opposition counter-part, Choice is an Illusion.  To view a legal/policy memo opposing the proposed bill to legalize assisted suicide and euthanasia in New Jersey, please go here:  https://choiceisanillusion.files.wordpress.com/2014/12/a-2270-3r-memo-12-02-14.pdf

Wednesday, April 23, 2014

Attend the New Hampshire Victory Celebration Dinner!

Featured Speaker
John B. Kelly
Former New Hampshire State Representative, Nancy Elliott has organized a "Victory Celebration Dinner" to celebrate the overwhelming defeat of assisted suicide in New Hampshire. The dinner is sponsored by the Euthanasia Prevention Coalition.

The dinner speaker will be John B. Kelly, New England Regional Director for Not Dead Yet.  

The dinner will also celebrate opposition to assisted suicide throughout New England and Quebec.  

Where:  Crowne Plaza Hotel, Nashua New Hampshire, USA
When:    Friday, May 30, 2014
Cost:     $35.00

Book a room at the Crowne Plaza Hotel for $119 under the name "Euthanasia Prevention Coalition."  

Please make payments for the dinner to the Euthanasia Prevention Coalition, Box 611309 Port Huron MI 48061-1309, or contact Alex Schadenberg at: 1-877-439-3348 or info@epcc.ca

Please consider a generous donation to the Euthanasia Prevention Coalition, Not Dead Yet and other groups that were instrumental to defeating assisted suicide in New England and Quebec this year.

To donate to the Euthanasia Prevention Coalition, click here.
To donate to Not Dead Yet, click here.

Friday, September 27, 2013

A Chilling Prospect for Disabled People


As posted by Not Dead Yet

        Stephen Hawking has expressed the view, in the course of a BBC interview, that people “who have a terminal illness and are in great pain should have the right to choose to end their own life”. They do, of course, have that right now:       ending your own life isn’t a criminal offence. What Professor Hawking means, presumably, is that the law should be changed to legalise what is being euphemistically called ‘assisted dying’ – or, to put it another way, that doctors should   be licensed to supply lethal drugs to terminally ill people to help them commit suicide.
There is, in fact, a Private Member’s bill, in the name of Lord Falconer, before the House of Lords at this moment proposing just that. Professor Hawking believes that “there must be safeguards that the person concerned genuinely wants to end their life and they are not being pressurised into it”. This is a fair enough caution to sound. What is remarkable, however, is that Lord Falconer’s ‘assisted dying’ bill does not contain any specific safeguards to ensure that these and other conditions are met.

Professor Hawking states that “human beings should not be allowed to suffer any more than animals”. This is a well-worn argument of the euthanasia lobby – that we put down suffering animals out of kindness, so why don’t we do the same for humans? But what those who use this argument seem to overlook is that people don’t always take their pets to be put down out of compassion: they sometimes do so because they are a nuisance or because they are proving expensive to treat or to feed. Is that the sort of society we want to see?

Those of us with disabilities are all too familiar with the view that many in society take of us – that they wouldn’t want to live with our limitations and that our lives are less worth living than the lives of others. I myself have encountered such attitudes: I have been told that ‘people like me’ do ‘a good job’, I have had it put to me by a medic that I should not have children and I have even been patted on the head by a colleague. The Paralympics, in which I have had the opportunity to participate, is sadly an all too rare occasion in which people with disabilities are valued.

Legalising ‘assisted dying’ for terminally ill people illness reinforces prejudices about people with disabilities. Terminal illness and physical disability aren’t, of course, the same thing – many people with disabilities aren’t terminally ill. But terminal illness can often bring with it disability of one kind or another and it’s not a big step in popular perceptions to see the two as in some way linked.

That’s why the majority of people with disabilities, including me, are afraid of a law that would offer a lesser standard of protection to seriously ill people than to others. Anyone who is inclined to discount such fears should read the report of Lord Falconer’s self-styled ‘commission on assisted dying’: it is on the recommendations of this unofficial and self-appointed group that his Private Member’s bill rests. Their report recommends that physician-assisted suicide should not be offered to people with disabilities who are not terminally ill “at this point in time“. It is those italicised words that send a chill down the spine of many people with physical disabilities. Lord Falconer’s ‘assisted dying’ bill may be well-intended. But it risks becoming a law to cater for the strong rather than to protect the weak.

Thursday, January 17, 2013

Not Dead Yet: More on Double Euthanasia in Belgium


January 15, 2013 | posted by Stephen Drake

The 24+ hours since I posted on the double euthanasia of two deaf men in Belgium has resulted in some developments, varied reactions, and some reflection on my own part.  My apologies if this post seems a little scattered – a little like mental  multi-colored pasta thrown against the wall -  but sometimes that’s how my mind works.

First, the National Federation of the Blind (NFB) issued a statement from Dr. Marc Maurer, President of the NFB:
“This disturbing news from Belgium is a stark example of the common, and in this case tragic, misunderstanding of disability and its consequences.  Adjustment to any disability is difficult, and deaf-blind people face their own particular challenges, but from at least the time of Helen Keller it has been known that these challenges can be met, and the technology and services available today have vastly improved prospects for the deaf-blind and others with disabilities.  That these men wanted to die is tragic; that the state sanctioned and aided their suicide is frightening.”
You can view the entire release and learn more about the NFB here.

At the same time, I’m sure that others have noticed that there are suicides getting a lot of coverage this week.  The Pentagon reports that deaths by suicide reached a record number in 2012, with more military deaths occurring due to suicide than from combat.  The suicide of programmer/activist/open source advocate Aaron Swartz – apparently overwhelmed by the double effects of depression and what is being called “overreaching” prosecution over his download of millions of journal articles.  He was faced with decades in prison and enormous fines.

Read through the comments on any of the countless articles covering these suicide stories and you’ll be hard-pressed to find anyone reacting like this:
  • “It’s their body, their choice.”
  • “When people decide they need to end it, they should be able to get help to do so.”
  • “It’s too bad they had to use violent means – animals can get euthanized; we treat animals better than humans.”
The lack of statements like those struck me because they’re common sentiments expressed in article “comments,” and interactions on Facebook when people react to “double euthanasia” of Marc and Eddy Verbessem, the identical twins whose deaths are still making news.

I think that we don’t see those comments in the cases of Aaron Swartz and the military because those people are valued.  I know that euthanasia proponents say that their movement is all about respecting individual choice, but why are the “choices” of  Marc and Eddy Verbessem “respected” while the suicides of military personnel and the suicide of Aaron Swartz are treated as preventable tragedies?  The answer, of course, is that euthanasia isn’t about “respect,” but agreeing that another person’s continued existence is pointless.

The animal comparisons always get me.  I’ve written before (with Dick Sobsey) about the myths surrounding the “kindness” of pet euthanasia.

What struck me this time was an even deeper disconnect.  Anyone who spends a lot of time on the internet knows that cats are probably the most popular thing in existence.  Some of the most popular pictures/videos of cats involve disabled cats – and dogs.  Right now, the most popular cat on the internet seems to be Oskar the Blind Cat:


If you look around, you’ll find stories of a deaf and blind dog rescued from euthanasia and a pet now for seven years and there’s even a story out there about a deaf/blind dog with three legs that rescued his family from a fire.

Oskar has lots of fans.  Stories like the ones about the dogs seem to make people just tear up and feel generally inspired.


But two deaf men losing their vision getting “put down”?  That evokes shrugs and even applause.

I don’t get it.  And I think I’m grateful I don’t.