When Not Dead Yet activists joined me in attending Jack “Dr. Death” Kevorkian’s trial in the late 1990s, Hemlock’s executive director Faye Girsh was there supporting him. Two thirds of his body count consisted of people with non-terminal disabilities. Girsh also advocated eligibility for people with cognitive disabilities and dementia, with or without consent. Leaders also advocated active euthanasia and “mercy killing.”
By Diane Coleman [pictured here]
Three days ago, Amber Smock, Vice President of Advocacy at Access Living, was quoted extensively in a Chicago Tribune article about Illinois’ assisted suicide bill. Today, the editorial board of the Tribune took a position opposed to the bill.
The March 5th article, “Should Illinois become a ‘right-to-die’ state? Lawmakers consider end-of-life option for terminally ill adults,” covered both sides. Here is the segment giving Access Living’s perspective as a disability rights organization:
Yet some disability rights advocates warn that the measure could put vulnerable populations at risk, including seniors, disabled folks and people with mental health issues.
Assisted suicide laws are dangerous because though these laws are supposed to be for people with six months or less to live, doctors are often wrong about a terminal diagnosis. In 2009, while living in Washington state, my mother was determined to be at the end stage of chronic obstructive pulmonary disease. I was told her death was imminent, that if I wanted to see her alive, I should get there in two days. She rallied, but was still quite ill, so she was placed in hospice. Her doctor said that her body had begun the process of dying.
Though she survived 6 months of hospice, her doctor convinced her that her body was still in the process of dying, and she moved home to Colorado to die.
My mum didn’t die. In fact, six weeks after returning to Colorado, she and I were arrested together in Washington, DC, fighting for disability justice. She became active in her community and lived almost 12 years!
Delaware’s assisted suicide bill is based on legislation in Oregon, where assisted suicide was first legalized. Data from Oregon provides insight into the top reasons that patients ask for assisted suicide. The top five reasons that people gave were the loss of autonomy, being unable to participate in activities that make life enjoyable, loss of dignity, loss of bodily functions and becoming a burden on family, friends and caregivers. These reasons are all disability-related. Contrary to popular belief, pain does not even make it into the top reasons people give to justify their application for assisted suicide.
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| John Kelly |
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| Diane Coleman, JD |
While rom-com ‘Me Before You’ was only released in Australia today [06/15/16], it’s already receiving a growing amount of backlash. . . .
Activists . . . argue the film promotes the notion that disabled lives are considered less valuable and that the film romanticises death. . . .For more information about the worldwide theater protest, click here.
The Autistic Self Advocacy Network is deeply concerned about the omission of disabled people and representatives from disability rights organizations at yesterday’s hearing. Given that more than half of the groups in the New Jersey coalition opposing the bill are disability rights organizations and centers for independent living, it is unconscionable that the committee deliberately excluded witnesses from the disability community. Even after our community submitted a formal request for inclusion among the witnesses, the committee declined to invite a disability community representative.
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| Featured Speaker John B. Kelly |
“This disturbing news from Belgium is a stark example of the common, and in this case tragic, misunderstanding of disability and its consequences. Adjustment to any disability is difficult, and deaf-blind people face their own particular challenges, but from at least the time of Helen Keller it has been known that these challenges can be met, and the technology and services available today have vastly improved prospects for the deaf-blind and others with disabilities. That these men wanted to die is tragic; that the state sanctioned and aided their suicide is frightening.”You can view the entire release and learn more about the NFB here.
Apple Valley woman may have killed herself using information from Final Exit Network
In a March 26 letter to a defense attorney, Dakota County Attorney James Backstrom’s office stated it will convene a grand jury May 9-11 seeking an indictment to prosecute right-to-die advocates for their role in an Apple Valley woman’s May 30, 2007 suicide.
Doreen Nan (Gunderson) Dunn, then 57, suffered years of intense chronic pain and depression when she killed herself using a hood and helium gas, according to Robert Rivas, attorney for the Final Exit Network, a national nonprofit organization accused of assisting suicides and named in the investigation.
Before taking her life, Dunn had paid a $50 membership fee to Final Exit Network, according to a March 20 search warrant issued by the Georgia Bureau of Investigation detailing evidence forwarded to the Dakota County Attorney’s Office and obtained by Sun Thisweek.
The warrant cites phone records, documents, airline tickets and car rental contracts as evidence Dunn had contact with some Final Exit members months before taking her life and on the day she died.
Final Exit members named in the investigation are Thomas “Ted” Goodwin, former president of Final Exit Network; Roberta Massey, a Final Exit “case coordinator;” Jerry Dincin, then-Final Exit Network president; and Dr. Lawrence Egbert, Final Exit medical director who Newsweek dubbed “The New Doctor Death.”
Those names should look familiar. Goodwin and Egbert were both involved in the suicide of John Celmer, a man in Georgia who committed suicide after successful cancer treatment left him distressed about his appearance after surgery. Massey and Egbert were defendants in the case involving Jana Van Voorhis, a woman with no serious physical problems but who had a long history of emotional and psychological issues.Charges the grand jury will be asked to consider are aiding suicide, conspiracy to commit the crime of aiding suicide and interference with a dead body, according to the search warrant.
A Final Exit Medical Committee reviews information, and if approved, an “Exit Guide” is assigned who provides detailed information how a person may purchase equipment and take steps to end their own life, according to the website.That right there - about FEN never supplying equipment. It's not true. How do we know? The overly-modest and zealous Dr. Larry Egbert told us so, in an interview that appeared in the Washington Post in January:
“The Network never supplies equipment,” the website states.
Egbert tells me that years ago he asked someone who was about to “exit” if he could reuse the hood to save future patients the cost of buying a new one. The patient was delighted with the idea, Egbert says. He started asking everyone.So, Egbert, by his own admission, has provided equipment on a regular basis in his work as an 'exit guide.' That might seem like a minor point to some in and of itself, but the fact is, there is no way for us - the public - to verify any claim FEN makes. It's only when someone like Egbert gets to talking and bragging we get to hear some facts that depart from the established script.
The hood in my bare hands feels slightly slick. So, this one, the one I’m holding, has been used to end someone’s life? I ask. Egbert tells me it has surely been used at least once, and maybe several times, and the same could be said for most of the other 17 hoods in the garbage bag.
Right-to-die argument blurs a key distinctionThe next letter was from Jennifer Hale, executive director, the Georgia Hospice and Palliative Care Organization. Her letter:
“Ensuring death with dignity” (Opinion, Jan. 7) blurs the distinction between the freedom to end one’s own life, which cannot be denied, and the freedom to have others end one’s life, which endangers the lives of people less valued by society.
The elderly couple referred to in this column chose to inform their assisted-living facility of their intention to starve themselves to death (which the administration, unsurprisingly, could not support). They could have chosen instead to check out of the institution for a short stay with their children. I suspect organizational (rather than personal) advice led to this public confrontation.
Older and/or disabled people can be expensive to support. It is reprehensible to select them as the population encouraged to die before their time — rather than supporting them to live and making them feel welcome in the world.
Eleanor Smith, Decatur
Final Exit leader’s essay ‘inherently misleading’Hale's letter opens with a strong and harsh assessment of both Stephenson and the Final Exit Network.
The piece by Wendell Stephenson of the Final Exit Network attempting to link the philosophy of hastened death and assisted suicide — or, as he terms it, “self-deliverance” — with the ideals of dignity at the end of life provided through state-licensed and federally certified hospice care providers is absolutely wrong, inherently misleading and seems mildly predatory from my perspective (“Ensuring death with dignity,” Opinion, Jan. 7).
At the Georgia Hospice and Palliative Care Organization, it is our mission to provide education, information and advocacy to the public and to providers of end-of-life care to raise awareness of the options available to every person and improve on the quality of that care. Nowhere on the Final Exit Network’s website could I find where there was any support for families.
The couple mentioned in this piece made a decision about how they wished to spend the end of their lives. Hospice did not help them make this decision and did not help them carry it out. Hospice helped them return to their family’s residence and provided them with physical and emotional support and ongoing bereavement care for the family.
Jennifer Hale, executive director, the Georgia Hospice and Palliative Care Organization
I am a 32 year old quadriplegic who works as a “Systems Advocate” in Rochester, New York. I am a college graduate and currently working on my Masters’ degree. I was disturbed to see Joel Marks’ forum piece, advocating for legalized assisted suicide. (“Extending life no favor for some”).